Your Privacy

Overview

The confidentiality and security of the information managed by our systems is treated with the utmost priority by WAGER.

WAGER information will only be used to facilitate medical research purposes. Particular research projects wishing to use WAGER will require approval and monitoring by at least one Western Australian ethics committee.

In addition, WAGER itself has been approved by and operates under the supervision of the ethics committees listed below:

• UWA - Human Research Ethics Approval Ref. RA/4/1/1180
• Sir Charles Gairdner Hospital - Human Research Ethics Approval Ref. 2004-135
• Confidentiality of Health Information Committee (CHIC) - CHIC Approval Ref. 200445

For further information about these approvals, please contact:

WAGER and Your Information

WAGER abides by the Privacy Act 1988 (Cth) and its National Privacy Principles.

Any temporary links made between the study datasets as part of an approved research study will use study identifiers rather than names. As such, names of participants are never revealed to researchers.

All WAGER staff sign Confidentiality Agreements before they work with any confidential information.

Disclosure

Personal information that identifies an individual is not disclosed to any third party unless:

• It is part of the data flow requirements of a research project's protocol (informed consent from the individual will be sought at the outset)
• It is required by law
• We have the individual's permission
• It is necessary to prevent or lessen a serious or imminent threat to someone's life, health or safety.

Withdrawing my information

WAGER itself is not a research study, however if you are participating in a study that uses WAGER and you wish to withdraw from that study, please contact the particular study researcher.

Participants in all medical research studies can withdraw from the study at any time and, if their study uses WAGER, have their data withdrawn from WAGER systems also.